ME/CFS
Myalgic encephalitis or chronic fatigue syndrome (ME/CFS) is characterized by chronic fatigue lasting at least six months and a pronounced exercise intolerance (post-exertional malaise, PEM for short). The triggers of stress intolerance can be not only physical, but also mental or emotional in nature.
Stress intolerance can be triggered by day-to-day activities and lead to a worsening of symptoms. For example, even doing the housework, a short walk around the block or grocery shopping is often too much of a strain.
Triggers are usually infectious diseases. ME/CFS symptoms also develop in a significant proportion of post-COVID patients.
The exact mechanisms of ME/CFS are still subject to research. However, studies have shown changes in the metabolism of those affected that indicate altered and reduced energy production.
ME/CFS is a diagnosis of exclusion, i.e. other causes of extreme fatigue and exercise intolerance must be ruled out beforehand. There are currently no definitive biomarkers or tests that can clearly prove that a person has ME/CFS. The illness is therefore typically diagnosed (after ruling out other causes) with the help of a detailed medical history based on characteristic symptoms.
For ME/CFS affected persons, not adhering to their personal limits can lead to a short-term, but also a long-term worsening of symptoms and their own well-being. This is why "pacing" has become established. Pacing is not to be understood as therapy, but as a necessary way of dealing with oneself in order to stop the downward spiral associated with stress intolerance/PEM or to prevent it from starting in the first place. You are the one who sets the pace, knows your body best, must learn to listen to it and stay within your own energy limits. This is not always possible, as energy levels can vary from day to day or, in some severely affected cases, just going to the toilet can trigger a PEM.
We can discuss and optimize your pacing methods and options together.
I also recommend focusing diagnostically and therapeutically on your metabolism. Let us explore and control this together in order to help your body produce more energy on the one hand and relieve it on the other in order to save energy.
As patients with ME/CFS can become extremely fatigued by long conversations, I also offer the option of splitting appointments into several smaller ones. Alternatively, relatives and family members are welcome to take over parts of the conversation or participate in a supportive manner.
Simply contact the practice to arrange an appointment so that we can find the best possible solution for you.